FSHD Europe's ultimate goal is to improve the quality of life for people living with the muscle wasting disease FSHD.

FSHD affects the way you smile, the way you sleep, the way you get dressed in the morning, the way you work and the way people perceive and treat you. Many people with FSHD cannot smile, hold a baby in their arms, climb stairs or even walk. Living with FSHD requires adapting to these ever increasing physical limitations.

Unfortunately, no treatment for FSHD has yet been found. That is why research is so important.