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Objectives of FSHD-Europe

European Voice of people with FSHD


to raise awareness, understanding and knowledge of FSHD.
to encourage, promote and share best practice in the care, welfare, support and diagnosis for FSHD affected individuals and their families.
to stimulate, encourage and support more research into finding a cure for FSHD.
to source and raise funds for FSHD research and appropriate care and support programs.
to allocate and manage funds for more FSHD research, more FSHD researchers and appropriate care and support programs,
• to work with other national and international FSHD and dystrophy organisations,and governments to achieve the objectives of FSHD Europe.

 
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