FSHD Europe: The European voice of people with FSHD

 

FSHD Europe's ultimate goal is to improve the quality of life for people living with the muscle wasting disease FSHD.

FSHD affects the way you smile, the way you sleep, the way you get dressed in the morning, the way you work and the way people perceive and treat you. Many people with FSHD cannot smile, hold a baby in their arms, climb stairs or even walk. Living with FSHD requires adapting to these ever increasing physical limitations.

Unfortunately, no treatment for FSHD has yet been found. That is why research is so important.

Last Updated on Sunday, 06 November 2011 14:39

Latest News

  • 22 APRIL 2013: New animal model for FSHD. An international team of researchers, co-financed by FSHD Europe member the Dutch FSHD Foundation, has developed a mouse model with the genetic defect for FSHD. " We hope that in the near future these mouse models will serve an important purpose in drug development programs for FSHD," said co-author Prof. Silvère van der Maarel of the Leiden University Medical Center in a press release of the FSH Society. Read more
  • 22 MARCH - 14 APRIL 2013: Photo and video exhibition on FSHD in Paris. Read more
  • 10 FEBRUARI 2013: Innovative Medicines Initiative launches a €196 million pan-European platform for drug discovery http://bit.ly/XpOQzI
  • In work partly funded by FSHD Europe member the Dutch FSHD Foundation and the European Union, researchers from the Netherlands, France and the United States have discovered mutations in a gene on chromosome 18 that cause FSHD2. Read more
  • 17 JULY  2012: New publication by scientists from Montpellier (France) identifies increased oxygen stress and malfunctioning energy factories in FSHD. Read more
  • Book 'You're not alone with FSHD!' for sale!

    • Book 'You're not alone with FSHD!'

 
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