FSHD-Europe: European Voice of People with FSHD

• to raise awareness, understanding and knowledge of FSHD.
• to encourage, promote and share best practices in the care, welfare, support and diagnosis for FSHD affected individuals and their families.
• to stimulate, encourage and support more research into finding a cure for FSHD.
• to source and raise funds for FSHD research and appropriate care and support programs.
• to allocate and manage funds for more FSHD research, more FSHD researchers and appropriate care and support programs.
• to work with other national and international FSHD and dystrophy organisations, and governments to achieve the objectives of FSHD Europe.